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REFERENCES

References

The information on this site is grounded in peer-reviewed research and international diagnostic criteria.

About the references listed here

These are the sources cited across this site, or that underpin our self-check (based on the PI20). Where a DOI link is available, it leads to an external site.

In addition to academic literature, we also publish results from our own original survey in our original survey report.

  1. Original research

    Bodamer, J. (1947). Die Prosop-Agnosie. Archiv für Psychiatrie und Nervenkrankheiten, 179(1–2), 6–53.

    The landmark paper that coined the term "prosopagnosia" (Prosop-Agnosie), describing three cases of acquired prosopagnosia.

  2. Original research

    McConachie, H. R. (1976). Developmental prosopagnosia: A single case report. Cortex, 12(1), 76–82.

    The first case report of developmental prosopagnosia, describing lifelong face-recognition difficulty with no history of brain injury.

  3. Cognitive model

    Bruce, V., & Young, A. (1986). Understanding face recognition. British Journal of Psychology, 77(3), 305–327.

    A foundational cognitive model showing that face recognition proceeds through multiple processing stages.

  4. Review

    Behrmann, M., & Avidan, G. (2005). Congenital prosopagnosia: Face-blind from birth. Trends in Cognitive Sciences, 9(4), 180–187.

    A review of the neurocognitive mechanisms behind congenital prosopagnosia, discussing FFA dysfunction and the role of the face-processing network.

  5. Scale development

    Shah, P., Gaule, A., Sowden, S., Bird, G., & Cook, R. (2015). The 20-item prosopagnosia index (PI20): A self-report instrument for identifying developmental prosopagnosia. Royal Society Open Science, 2(6), 140343.

    The paper introducing the PI20, the original instrument behind this site's self-check. Published under a CC BY license.

    DOI link
  6. Assessment research

    Duchaine, B., & Nakayama, K. (2006). The Cambridge Face Memory Test: Results for neurologically intact individuals and an investigation of its validity using inverted face stimuli and prosopagnosic participants. Neuropsychologia, 44(4), 576–585.

    A validity study of the CFMT, a widely used objective test of face memory ability.

    DOI link
  7. Assessment research

    Duchaine, B., Germine, L., & Nakayama, K. (2007). Family resemblance: Ten family members with prosopagnosia and within-class object agnosia. Cognitive Neuropsychology, 24(4), 419–430.

    A family study of developmental prosopagnosia that includes face-perception assessment using the CFPT.

    DOI link
  8. Assessment research

    Duchaine, B. C., & Weidenfeld, A. (2003). An evaluation of two commonly used tests of unfamiliar face recognition. Neuropsychologia, 41(6), 713–720.

    An evaluation of the limitations of long-standing unfamiliar-face recognition tests, including the BFRT.

    DOI link
  9. Original research

    DeGutis, J., Wilmer, J., Mercado, R. J., & Cohan, S. (2013). Using regression to measure holistic face processing reveals a strong link with face recognition ability. Cognition, 126(1), 87–100.

    A regression-based study examining the relationship between holistic face processing and face recognition ability.

  10. Review

    DeGutis, J., Chatterjee, G., Mercado, R. J., & Nakayama, K. (2012). Face processing improvements in prosopagnosia: Successes and failures over the last 50 years. Frontiers in Human Neuroscience, 6, 348.

    A review summarizing 50 years of intervention and treatment research for prosopagnosia.

  11. Original research

    DeGutis, J., Cohan, S., & Nakayama, K. (2014). Holistic face training enhances face processing in developmental prosopagnosia. Brain, 137(6), 1781–1798.

    An intervention study showing that holistic face training improves face-processing ability in people with developmental prosopagnosia.

  12. Epidemiological research

    DeGutis, J., Mercado, R. J., Wilmer, J., & Rosenblatt, A. (2023). Prevalence of developmental prosopagnosia according to DSM-5 criteria in a large US sample. Cortex, 161, 163–176.

    Estimates the prevalence of developmental prosopagnosia (about 3.08%) under DSM-5 criteria in a large sample. The source for the statistics used on this site.

    DOI link
  13. Review

    Rossion, B. (2013). The composite face illusion: A whole window into our understanding of holistic face perception. Visual Cognition, 21(2), 139–253.

    A comprehensive review of holistic face perception through the lens of the composite face illusion.

  14. Epidemiological research

    Kennerknecht, I., Grueter, T., Welling, B., Wentzek, S., Horst, J., Edwards, S., & Grueter, M. (2006). First report of prevalence of non-syndromic hereditary prosopagnosia (HPA). American Journal of Medical Genetics Part A, 140(15), 1617–1622.

    The first large-scale study of the prevalence of hereditary prosopagnosia.

  15. Genetics research

    Sun, Y., Men, W., Kennerknecht, I., Fang, W., Zheng, H.-F., Zhang, W., & Rao, Y. (2024). Human genetics of face recognition: discovery of MCTP2 mutations in humans with face blindness (congenital prosopagnosia). Genetics, 227(2), iyae047.

    A family study of congenital prosopagnosia reporting an association between MCTP2 mutations and face recognition difficulty.

    DOI link
  16. Diagnostic manual

    American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.

    The DSM-5, which contains the diagnostic criteria for prosopagnosia.

  17. Epidemiological research

    Faraone, S. V., Banaschewski, T., Coghill, D., et al. (2021). The World Federation of ADHD International Consensus Statement: 208 Evidence-based conclusions about the disorder. Neuroscience & Biobehavioral Reviews, 128, 789–818.

    The source for the adult ADHD prevalence figures (e.g., 6.76% for the symptomatic form) used for comparison on the home page. An international consensus statement from the World Federation of ADHD.

    DOI link
  18. Epidemiological research

    Song, P., Zha, M., Yang, Q., Zhang, Y., Li, X., & Rudan, I. (2021). The prevalence of adult attention-deficit hyperactivity disorder: A global systematic review and meta-analysis. Journal of Global Health, 11, 04009.

    The meta-analysis behind the persistent adult ADHD prevalence figure (2.58%) used on the home page.

    DOI link

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